Further Up The Road!

In order to reduce the pain I have a few more surgeries to go. I am not scared for either of them as they have both been fully explained by my medical team. One surgery is on November 29th which is the Laparatomy to reduce the abundance of adhesions. My Bladder and Uterus are stuck to my pubic bone thus when the bladder gets full it pulls on that pubic bone. While the Doctor is in there he will clean out my uterus, ovaries, and fallopian tubes, giving us about 8 months to try and conceive again. That is our last chance (as the adhesions will eventually grow back) even with a barrier put in there. Eventually a Hysterectomy will be needed but I am trying to put that off as long as I can. I believe in miracles because I was one myself so I'd like to keep my female (baby making parts) in tact for as long as I possibly can. I got a phone call today from the PNE Specialist to discuss the surgery.The 2nd Surgery is the very LONG awaited Pudendal Nerve Decompression. This is a very minor surgery compared to every thing I have already gone through. The Doctor will make a tiny incision in my vagina and go into where the Pudendal Nerve is located. Then they test the nerve while inside with a special machine. They test it's conductivity on both sides. After this they gently decompress around the pudendal nerve. It will take about 30-45 minutes. The they test the nerve conductivity again and sew up the incision. When I wake up I will have an epidural for 3 days for the pain. i won't need a foley catheter because I can sit up an empty my woderful Indiana Pouch at the side of the bed with a male urinal. After 3 days I will be discharged locally in NH and put on oral pain medication while healing. After a week he will clear me to go back home. This surgery will be done sometime in the Spring as I have a wedding to attend Easter weekend and I would like it done after that. My loving Grandmother is helping financially and my Mom even though she is going through her cancer treatment will also attend this trip to NH. This Doctor is excellent in his line of work and has done over 100 of these PNE Decompressions, in fact he was about to do one today after he called me. I would only go to the best! The road continues. Hopefully the pain will be reduced enough to live with a little more activity than I do now. I cherish the good days and rest and take care of myself on the bad days.

Good Days and Bad Days

I have not put up a journal entry in here since the winter. (My Indiana Pouch is 1 year old and doing wonderfully) After I was diagnosed with Pudendal Nerve Entrapment and Vestibulodynia, I didn't want to write. There is more surgery in my future. Until that time, I have some really good days. On the good days I take them and run as fast as I can. The bad days are real bad. I've been taking one day at at time. I try to listen to my body and when I need rest, I do. I turned 31 on June 11th. I do feel awfully behind in life but I try to look at what I have been through as some wonderful accomplishments. I've been taking a lot of walks, going to Physical Therapy, and spending time with family and friends when I'm feeling up to it. Taking photos of the nature and life around me has been fun and rewarding.

More Snow in CNY

As you can see, my car is covered. It's not as bad as to the North of us where they got over 6 feet! Needless to say, Today was a SNOW day for us.

Kara

Ice Storm Western NY 2007

We had an ice storm this morning. It left us with some pretty photos. To see a closer view just click on each photo.

First Snow!

We have gotten a foot of snow bright and early this morning. I have to travel to my Parent's House because I have a nerve block tomorrow and I am not looking forward to packing up my car, digging it out of the snow, and driving in it for 2 hours. I'll be sure to pack emergency everything! Early this morning when my Husband was leaving for work, his Boss called and said he was stuck on our hill and going nowhere. When I looked out the window I saw a car 2 cars stuck in our paking lot. I can't imagine having to call someone out to pull you out of your own driveway. Needless to say, I will be going at a very slow pace today to match my very slow mood to getting ready to go. We are expecting several more inches. We have had a very mild winter before this and have a total of only 6 inches for all of our winter season. Today obviously changes that total. We are used to very heavy winters and we live in what is called the "snow belt" for NYS. Which means that we always get hit pretty hard. But the first time it happens we are never fully prepared.

Happy New Year!

I managed to drag myself out of bed and go to our New Years Eve Party. There were 20 people there. I got dressed up and even put on some makeup. About an hour into the party the Host says: The toilet is broken and we don't want anyone peeing outside so you will have to hold it. Well you can imagine everyone went nuts! Not to mention there were two kids there staying overnight. There were 9 peopel staying overnight. The Host then says: STOP TALKING about our problem! Everyone went nuts again and started talking about it even more. You all can imagine how I felt! IT's and IC Person's WORST NIGHTMARE!!!!!!!!!!!!!! And we were ALL drinking! I wanted to leave but the Host insisted we all stay until midnight. It was a disaster! The toilet backed up into their basemet and there was raw sewage all over his basement. One of our friends lived a few blocks down and I was Sober so they designated me the DD. We had to drive over to his house to pee. I took 3 people over and then I said! That's enough. Luckily my Indiana Pouch can hold 1000cc's. I was able to hold it until we left at 4:00AM.

Kara

On the Road Again

The Testing Begins Tomorrow.

I will start the testing process to determine what is happening. It will be a long road but at least we are starting and I don't have to wait forever.

Kara